At the doctor today Eddy sits looking down and we talk about him like he isn't there, but he is there. He looks mad at times, and scared at other times. He says very little or nothing. We learned from the doctor that when he has one of these episodes we need to elevate his feet. This is good simple advice and it makes me feel empowered for when this happens again. Mark is not so sure and he requests a change to some different meds to try and avoid the seizure all together. We went years without any of these episodes and now they are quite frequent. His state is precarious, his circulation poor, he is slow to respond to much stimulus, he is forgetting how to eat, but he's alive. So we go along with him moment by moment, ill-equipped as we are, our resolve propping him up. It's all we can do.
Friday, August 5, 2011
Episode
At the doctor today Eddy sits looking down and we talk about him like he isn't there, but he is there. He looks mad at times, and scared at other times. He says very little or nothing. We learned from the doctor that when he has one of these episodes we need to elevate his feet. This is good simple advice and it makes me feel empowered for when this happens again. Mark is not so sure and he requests a change to some different meds to try and avoid the seizure all together. We went years without any of these episodes and now they are quite frequent. His state is precarious, his circulation poor, he is slow to respond to much stimulus, he is forgetting how to eat, but he's alive. So we go along with him moment by moment, ill-equipped as we are, our resolve propping him up. It's all we can do.
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3 comments:
My heart goes out to you and your family. I am seeing changes and an occasional episode of some sort with my dad, but it sounds like you have a tougher situation. I love you comment, "...our resolve propping him up." I can see that.
Best to you - hugs.
Thanks. It's all sort of surreal. Taking it a day at a time helps the hard part is that we have 3 parents who are entering this unknown zone.
Of all the doctors we saw on my dad's journey the only person who spoke TO him (and loudly thank god) was his dentist. In between appointments he'd ask when we were going to the dentist again. People never lose the desire to matter and be recognized as being.
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