Tuesday, September 23, 2014


 Thinking about William Morris

Between you and me, I'm overwhelmed. Everything feels very touch and go. I am one day away from swallowing the prescribed radioactive iodine and I can't say I don't have reservations about what is about to take place. I've been to the hospital twice in two days to receive a shot deep into my ass muscle that will hide the effects of the synthetic hormone Liothyronine during the prescribed nuclear scan. 

I discovered a few days ago that I have likely been under dosing my Liothyronine. My lifeline. I've been brain foggy and was feeling like my world was closing in on me. I was pretty sure it was the early signs of dementia, seriously. I was doing everything slowly. I found myself in a kitchen filled with young people buzzing about and I could not keep up with the conversation. It was frightening. I thought it was hunger from the prescribed diet and that was probably a factor but it wasn't the whole story. In 9 months I have gone from having one healthy thyroid that I thought worked pretty well—although now I have some doubts—to half a healthy thyroid, and now no thyroid. At first the medication made me jittery so backing off on it seemed the right thing to do but I went too far obviously.

I am struck. I am without a part of my body that I barely noticed or even understood and now I am tasked with accepting the reality of living with a dependency on medication that I don't quite recognize the effects of. It all makes me want to break down and cry. In the hospital yesterday morning waiting for Mark to park the car I just wanted to weep big poor-me-tears. In that vast waiting area, so somber, so many sick people coming in and out. It felt scary and bewildering. I felt lonely there and loneliness is not something I generally think about but this whole process makes me feel profoundly lonely. It is my job alone to carry my body through this medical obstacle course. The shots make me feel sick so I can't do too much, the whole thing is distracting me from what I would rather be thinking about. Stress causes cancer you know. This is the ridiculousness of the whole exercise. Dealing with cancer can give you cancer.

My friend who has the same cancer as me but in more sites started her low-iodine odyssey yesterday. I stopped by today to give her a hug. She reminded me that I was almost done. Friday is the scan and then I can return to normal. Another new normal.

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